This is our shared space to signpost various resources, services and information that may support your emotional wellbeing. If you have anything you’d like to submit to be shared on this page, please email community@super-rare.org
“Social prescribing, also sometimes known as community referral, is a means of enabling health professionals to refer people to a range of local, non-clinical services. The referrals generally, but not exclusively, come from professionals working in primary care settings, for example, GPs or practice nurses”
(source: The Kings Fund)
“Social prescribing involves helping you take part in social activities or get practical support to improve your health and wellbeing. From befriending services to debt advice, gardening groups to art clubs, it is based on what matters to you”
(source: National Academy for Social Prescribing)
For more information on how to access social prescribing, please visit the National Academy for Social Prescribing:
Rare Minds is a charitable organisation that has recently launched a fantastic Wellbeing Hub, providing resources and information in relation to:
You can access their Wellbeing Hub here:
The Genetic Alliance provides a wealth of information resources for living with a genetic, rare or undiagnosed condition
Over The Wall is a UK based charity for children and young people with health challenges and disabilities to discover a world of mischief and magic
Well Child provides information about looking after a child with complex needs, from diagnosis to transition to adult services, and everything in between.
Rainbow Trust Children’s Charity supports families who have a child with a life-threatening or terminal illness.
Sue Ryder is here to make sure that everyone approaching the end of life or living with grief can access the support they need.
During 2024 and 2025 some of our amzing community members shared their stories with Rare Revolution Magazine, you can access these article here:
Should you require more immediate support, please do not hesitate to contact your GP or out of hours support if necessary. In an emergency, please call 999.
There are also a number of national services supporting people in a crisis, such as:
the Samaritans https://www.samaritans.org/ (phone 116 123)
https://www.giveusashout.org/ (text ‘SHOUT’ to 85258).
For more information, visit:
https://www.mind.org.uk/information-support/guides-to-support-and-services/crisis-services/getting-help-in-a-crisis/
or
https://www.nhs.uk/mental-health/feelings-symptoms-behaviours/behaviours/help-for-suicidal-thoughts/
For more general advice on finding the words to talk to your GP about your mental health, visit: https://www.mind.org.uk/findthewords See also: https://www.nhs.uk/mental-health/
