At the start of this year, our alliance of charities concluded our National Community Survey into the experiences of those with rare conditions affecting the bone marrow.
Since then, we have been working together to publish our findings as a comprehensive report, which provides a new and detailed insight into the experiences of living with a rare bone marrow condition.
To read the report select an option below.
On Thursday 16th November, The Aplastic Anaemia Trust will give an online lunchtime presentation of headline findings, on behalf of our alliance of charities. All are welcome to attend this online event:
A patient only event is planned for patients to hear the findings in a confidential patient-only online space. Details will be announced shortly.
The report was funded thanks to sponsorship from Alexion AstraZeneca Rare Disease, Pfizer, Roche and Sobi, and the survey was funded by sponsorship from Alexion AstraZeneca Rare Disease, Roche and Sobi. The survey development was supported by Absolute Market Research and M+F Health, and the report development was supported by M+F Health.
Alexion AstraZeneca Rare Disease, Pfizer, Roche and Sobi had no editorial control over the content of the report.