The Super Rare Fundraiser provides the opportunity for people living with rare conditions such as Shwachman Diamond Syndrome to come together in order to raise awareness and funding.

Money raised through donations and fundraising events will be hugely appreciated and will enable our charity to continue to support our community in ways that matter most to them.

Donations that you make could contribute to patients travel expenses to vital appointments. A walk that you arrange could help fund a psychologist for a young person struggling to navigate their way through huge changes in their life whilst also dealing with the impact of SDS. Money raised through a bike ride that you undertake, could provide support for a family day to enable patients and their families to come together and share experiences.

Funding raised will also be used to provide hope to out community by supporting the vital research projects being carried out into treatments for SDS.

Being a small charity, funding helps us to ensure that there is always someone available listen, support and reach out patients and their families when needed.

Here at SDS UK we are super excited to be part of this amazing fundraising opportunity and hope you can support us in some way, however small.

The Super Rare Campaign is enabling small charities to make big impacts on the lives of people with rare conditions.

Together we are stronger.