DCAction has joined with the Aplastic Anaemia Trust and the Better Together for Healthy Bone Marrow partnership to take part in Super Rare 2022.
Our aim is to support people with rare diseases. Your fundraising this year could provide someone with access to an expert psychologist or to help develop materials to raise awareness of rare conditions. By taking part in a sponsored Together Walk, you could ensure that someone living with a rare condition can reach a helpline for advice on how to navigate the benefits system or how parents can prepare themselves, their child and teaching staff for a first day of school.
Super Rare was set up to support people living with Aplastic Anaemia during the pandemic. For the past two years, funding raised by Super Rare has helped to expand services and support. The Better Together partnership aims to build on this success and to plan new projects to support people living with the rare conditions represented by the seven small partnership charities.
Please keep an eye on the Super Rare website or DCAction.org for details of the Bath walk and how you can sponsor a participant or donate.
We look forward to hearing stories and looking at photos from your Super Rare endeavours throughout February and March, and seeing where you walk on 25th February 2023