
We are pleased to be able to bring you access to a benefits advice and support service, to help you understand and navigate the benefit system, in relation to your medical condition.
From our community survey results, published in Rare Voices, we know that more than of half our collective community flagged a need for better access to information regarding benefit eligibility.


We have a wealth of information resources for you to access, across various benefit topics.
We are also able to provide one-to-one support from a dedicated Benefits Advisor, to help you with your specific circumstances. Appointments are currently offered on Monday and Tuesday evenings. If you have any questions about this service, please email community@super-rare.org
Robert will be hosting a webinar about the benefits you may be entitled to, which you can register to attend below:
You can watch a recording of the previous webinar, here: https://super-rare.org/benefit-advice-and-support/benefit-webinar/
FACTSHEETS
We have factsheets and advice on the following topics (these are up to date for the financial year 2024/2025):

Robert Mandelstam is a Welfare Benefit Advisor at The Maggie’s Centre at the Royal Marsden, a charity focused on providing financial, emotional and practical support to those living with cancer. He is now also working to support our six charities as part of the Better Together project. Robert has been working in the field of welfare benefit advice for over 10 years in a range of different settings, namely, the NHS, local authority/housing providers and other third sector organisations. Robert aims to break down the barriers which exist around accessing support for some of the most vulnerable people in society and is adept at providing advice from the initial stages of a claim, through to representation at benefit tribunals.
