With thanks to The National Lottery Community Fund, we are pleased to be able to bring you access to a benefit advice and support service, to help you understand and navigate the benefit system, in relation to your medical condition.
From our recently published community survey results, Rare Voices, we know that more than of half our collective community flagged a need for better access to information regarding benefit eligibility.
We have a wealth of information resources for you to access, across various benefit topics.
We are also trialling providing one to one support from a dedicated Benefit Advisor, to help you with your specific circumstances. Appointments are currently offered on Monday and Tuesday evenings. If you have any questions about this service, please email community@super-rare.org
We have factsheets and advice on the following topics (these are up to date for the financial year 2023/2024):
If you would like to access this support service, please complete the referral form linked below. This service is available to all those supported by the following charities – whether you are a patient, or someone who cares for someone with one of these conditions.
Once you have completed this form, we will be in touch to book you in with our Benefit Advisor (keep an eye on your junk folder just in case the email goes there!). This service is offered to our six communities without charge. If you have any questions about this service, please email community@super-rare.org
Robert Mandelstam is a Welfare Benefit Advisor at The Maggie’s Centre at the Royal Marsden, a charity focused on providing financial, emotional and practical support to those living with cancer. He is now also working to support our six charities as part of the Better Together project. Robert has been working in the field of welfare benefit advice for over 10 years in a range of different settings, namely, the NHS, local authority/housing providers and other third sector organisations. Robert aims to break down the barriers which exist around accessing support for some of the most vulnerable people in society and is adept at providing advice from the initial stages of a claim, through to representation at benefit tribunals.
