Super Rare runs each year in February and March. Please watch this space for more information and inspiration for Super Rare 2024!

People living with Super Rare conditions need our help more than ever. 

With increasing pressures in our health service, and a cost of living crisis – it is too easy for the needs of people with the most rare conditions to feel left out, and let down.  

Our Super Rare campaigns mean you can be there for someone with a rare condition. 

You can make sure that when someone feels lost, confused and alone – facing a diagnosis they don’t understand – there is someone there to reassure them and help them navigate the health system. No-one diagnosed with a rare bone marrow related condition should feel alone, no matter how rare. 

Our Super Rare charities may be small, but together, we are powerful.