People living with Super Rare conditions need our help more than ever. 

With increasing pressures in our health service, and a cost of living crisis – it is too easy for the needs of people with the most rare conditions to feel left out, and let down.  

You can be there for someone with a rare condition. 

By fundraising during our Super Rare campaign, you can help our small, specialist charities to be there when people need us most. 

You can make sure that when someone feels lost, confused and alone – facing a diagnosis they don’t understand – there is someone there to reassure them and help them navigate the health system. No-one diagnosed with a rare bone marrow related condition should feel alone, no matter how rare. 

Our Super Rare charities may be small, but together, we are powerful. And we’re joining forces to fundraise for Rare Disease Day and throughout February and March, because we truly are stronger together.  

Choose your charity, earn your tee and be Super Rare!